Another day another appointment

Well today we were at St Marys in Paddington to have Charlie's bloods done I also had to have mine done as a control factor apparently. Charlie was really good and he didn't even notice that they were taking his blood as he was to busy blowing bubbles with the play specialist so that was good. They even sprayed my hand with the cold spray so that I didn't feel it either!! We should hopefully have all the results back in 10 days time then his consultant is going to call me with a plan as to when he is to start the plasma infusions at Great Ormand Street hospital and what dose etc that he has to have. We are really really keeping our fingers crossed that what his consultant said about after Charlie has been on these infusions for a couple of months that he should be a different boy and the infections he gets should be much further apart and much less severe. As Charlie's lungs are starting to show damage from all the infections he is getting he has streaking and thickening of the bronchial wall which we never knew until last Thursday when they did another chest x-ray because his consultant was concerned with the sound of his chest. We have also found out a little more about the plasma infusions we have been told today that the infusions will take roughly about 4 hour depending on how much plasma has to go through and how he reacts to it etc etc. They put it in just through a drip as they would a blood transfusion or fluids so that isn't to great as I was under the impression it was just going to be a quick thing like maybe an injection or something every so often and that would be it, so I really had my eyes opened today and realised it was very different to how I thought it was going to be. But as long as it's going to help Charlie then it's fine by me as we really are running out of options in keeping him well as nothing seems to be working. Like the chest infection he has at present he was put on Cipro again last Thursday and started taking it Friday as we couldn't get it before then but he only has another 3 days left of it and he really doesn't seem that much better I'm really hoping that he picks up in the next few days as this does seem to of hit him very hard he's not sleeping well eating well or anything, he has also lost a bit of weight not loads but enough so that you can notice it. Ollivers been fine getting on well at school etc even with all the chaos going on around him!! Well that's about it for now I will blog again when I know more about whats happening with Great Ormand Street etc.