Clinic Good and Bad

Thought i would update on whats been happening here this week. Monday was just spent doing boring houseworky things the usual washing cleaning etc etc!! Then the weekly food shop. Tuesday Charlie had the audiologist where he got on well his ears are healing well and he has no hearing loss which i was very pleased about. He has had a few very bad infections that have lead to him having perforated eardrums but as i say they are looking good at the moment. The audiologist said she would not rush into surgery as she thinks he will grow out of these infections and said in any case there is a high chance that the grommets could fall out then you would end up back at square one, which was contradictory to what the ENT specialist had said last month, but then again that happens a lot.

Wednesday we didn't do much at all as the weather was so bad we stayed in and i entertained Charlie with colouring and watching DVDs which was nice as we curled up on his bed a lot of the day watching his favorite at the moment Toy Story.
All in all it was a very lazy but nice day.

Thursday Charlie and i had the dentist which went well the only thing that she has said about Charlie is that she can see he grinds his teeth and that it may become a problem when he has his big teeth. We are hoping that by that time he will have grown out of that. I have to have a filling taken out and redone which i wasn't very happy about but i thought that was best done when i didn't have Charlie with me, as i could just imagine the havoc he would create while i was in the chair!! So I'm going back in September to have that done. After the dentist we were going to go to the park but the heavens opened and i thought it best that we walked straight home especially as we were both dressed for summer with sandals etc on. After we got home and dried off it was lunch time. We spent the rest of the day colouring and watching DVDs which is rather sedate for Charlie as he is More likely to be seen swinging from the lights or something equally as mad, he has a lot of energy!! It was then bath and bed and time for me to relax, although I'm missing Olliver a lot now as he is still in Scotland I'm flying up to collect him on Monday while Charlie stays with my mum then home Tuesday.

Today was charlies appointment with his consultant who I was so glad to see as she has been off since last November doing research everyone else has been great but i know and trust her a lot as she dealt with Olliver also. Although he has been well for the last four weeks that is normally the longest he is ever well for. We went through his history for the last few months whats happening the cough swab results the infections and the pneumonia and the fact that his immune system is still low when at his age it should be fully developed and she to;d me that she thinks his lowered immune system could be causing him more problems than originally thought so he is being referred to St Marys hospital in Paddington as they specialise in haematology and issues relating to it, so we now attend the Royal Brompton, St Marys and many different departments at our local hospital. She also is keen for him to have his tonsills out grommets in and nose cauterised as she feels there maybe a small chance that the bugs that are growing in his tonsills could possibly be traveling down to his lungs and maybe adding to his problems. On the other hand it may be having no effect at all but we wont know until it has been done so fingers crossed it will have some good effect. He hasn't got his next ENT referral until November and then if they decide to take them out he will have to go on the waiting list so goodness knows how long that will all take. In the mean time we have plenty of appointments to keep us going. I also asked about the amount of prophylactic antibiotics he is on but was told that he absolutely needs to be on these as the consequences of him not taking them could lead to much more severe infections that cannot be treated by adding extra oral antibiotics and would mean that every time he gets an infection he could end up in hospital which we really don't want. Anyway that's enough for now i have to go and make us a light tea as we went to pizza hut after the hospital for a treat and I'm still quite full up but charlie is demanding dinner!! Catch up again next week.